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Living wills are bad predictors of post-injury wishes

The Natural Death Centre advocates that people make out Living Wills which specify how much high-tech intervention they want in certain medical situations where they may be unable to express themselves.

'People may be prepared to suffer a greater degree of disability than they imagined'

Nevertheless, a recent article in 'Brain Injury' injects a note of caution by suggesting that people may be prepared to suffer a far greater degree of disability than they might have imagined in advance.

In this article, Tom McMillan, Professor of Clinical Neuropsychology at the University of Glasgow, points out that Living Wills may represent the wishes of the person when able-bodied, but may not allow for the changes of mind that the person is very liable to undergo when injured.

He has detailed knowledge from his own clinical experience and from case reports of able-bodied people who sustained immense physical and brain injuries and yet who persisted in wishing to live, despite feeling suicidal at times, suffering pain and having become totally dependent on others - and despite in some cases having previously expressed a desire not to be kept alive in such a situation.

'Decisions such as the removal of artificial feeding should be made by the courts'

In his view, decisions such as the removal of artificial feeding should be made by the courts and should take into account not only the living will but also the views of the doctor, family, guardian and any expert opinion.

In the meantime, the position in the UK remains that an appropriately drafted living will (also known as an advance directive) is legally binding in common law.

  • For further information see 'Neuropsychological assessment of a potential euthanasia case' by T. M. McMillan and C. M. Herbert, Brain Injury, vol 14, p. 197 - McMillan's views are discussed in an article entitled 'Will to live' by Tom McMillan in New Scientist (Mar 11th 2000) and in the article 'Car accident shows risk of living wills' by Sarah Boseley in the Guardian (Feb 17th 2000).

  • A Living Will, Death Plan, Advance Funeral Wishes Form and Life Values Statement are available for £5 by credit card from the Natural Death Centre (6 Blackstock Mews, Blackstock Road, London N4 2BT, tel 0871 288 2098; fax 020 7354 3831; e-mail: rhino@dial.pipex.com; web: www.naturaldeath.org.uk). Or by secure online order.

  • For the USA, state-specific advance directives can be downloaded free from the web (at: www.choices.org).


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